Conference Speakers
Abby Bronson
Vice President Advocacy and External Innovation
Edgewise Therapeutics
Amy K. Fisher
Head of Patient Advocacy, Spark Therapeutics
Audra Boscoe
VP, Health Economics, Outcomes Research & Data Science Analytics
Beth Frates
MD, President, American College of Lifestyle Medicine; Director of Lifestyle Medicine & Wellness, MGH Department of Surgery; Faculty
Harvard University Extension School
Bethany Firem
Associate Director of Global Patient Affairs
Chelley Casey
Vice President, Patient Advocacy
Wave Life Sciences
Christopher Chauncey Watson
PhD, MHS, Global Marketing Director, HIV Franchise, Gilead Sciences; Researcher in Residence
Morgan State University Center of Urban Health Equity
David Gurzick
Ph.D., Member
Angelman Biomarkers and Outcomes Measure Consortium (A-BOM)
Deepa Dahal
Partner with Jamie Culp
Market Access Practice Lead - DKI Health
Emily McGinnis
Chief Patient Officer & External Affairs Officer
Taysha Gene Therapies
Gissoo DeCotiis
Global Head of Advocacy & Strategic Relations, Global Medical Affairs, Oncology, Daiichi Sankyo
Holly John
Senior Director of Patient Advocacy
Ifeyinwa Osunkwo
MD, Senior Vice President, Chief Patient Officer
Novo Nordisk Rare Disease
James Valentine
Director, Hyman
Phelps & McNamara
Jayne Gershkowitz
Chief Patient Advocate
Amicus Therapeutics
Jean Campbell
Principal, JF Campbell Consultants, Founding Board of Directors
Professional Patient Advocates in Life Sciences PPALS
Jennifer Helfer
Senior Director, Patient Advocacy and Engagement, Corporate Affairs
Viridian Therapeutics
Julia Carpenter-Conlin
MSW, Head of Patient Advocacy, Alkeus Pharmaceuticals
Kate Tighe
Vice President, US Public Affairs and Patient Advocacy, Immunology
Kathleen Flynn
Chief Executive Officer
National Tay-Sachs & Allied Diseases Association
Kay Matthews
Executive Director
Shades of Blue Project
Kristen Mosdell
Vice President, Head of Scientific Communications
Lee Greenwood
Father and Advocate
Ligia Del Bianco
Global Head, Patient Advocacy, Corporate Responsibility & Community Engagement
Lisa Lacasse
American Cancer Society Cancer Action Network (ACS CAN)
Lisa Savitt
Vice President
Luke Rosen
Founder, http://KIF1A.ORG , Partner, Every 1 Advocacy
Mary Wachter
Executive Director, State and Local Government Affairs
Meg Kilcoyne
Massachusetts State Representative 12th Worcester District
Michael Zincone
Senior Director, Patient Advocacy
Phil Gattone
CEO, National Bleeding Disorders Foundation (former CEO
Epilepsy Foundation)
Regan Sherman
Head of Patient Advocacy
Entrada Therapeutics
Rene Russo
Pharm.D., President and Chief Executive Officer
Sharon Lamberton
Deputy Vice President, State Policy and External Outreach
Sonali Chopra
Executive Director, Patient Advocacy Relations
Stacy Hurt
Chief Patient Officer
Tricia Mullins
Executive Director, Global Head, Early Patient Engagement & Professional Societies (Ex-China)
Wendy Erler
Vice President, Global Head, Patient Experience, Patient Advocacy & Patient Caregiver Insights

INTERESTED IN JOINING AS A SPEAKER, panelist or workshop leader?

Let’s talk about presenting a session, joining a panel discussion or conducting a valuable workshop.

Please contact Amy Chapman at