Event Speakers
Angelia Drake
RN, MSN, DNP, Director of Community Engagement and Strategy
GSK
Carrie Jones
Principal
JPA Health
Chelley Casey
VP Patient Advocacy
Wave Life Sciences
Claudia Hirawat
Chief Executive and Owner
VOZ Advisors
Courtney Firak
Patient Advocacy Lead, Ophthalmology
Spark Therapeutics
Danielle Graves
Vice President, Global Compliance and Privacy, Chief Compliance Officer
Atara Biotherapeutics
Darren Jones
CIA, Principal, Life Sciences Consulting Practice Leader
Baker Tilly
Durhane Wong-Rieger
Chair of Rare Disease International, Vice-Chair of Asia Pacific Rare Disease International, Treasurer of United Nations Nongovernmental Organization for Rare Diseases, President of Canadian Organization for Rare Disorders
Emily McGinnis
Chief Patient Officer and Head of Government Affairs
Taysha Gene Therapies
Eve Dryer
Vice President, Patient Advocacy
Travere
Ifeyinwa (Ify) Osunkwo
MD, MPH, Chief Patient Officer, Senior Vice President
Forma Therapeutics
Jamie Ring
Jamie Ring Advocacy Consulting
Jayne Gershkowitz
Chief Patient Advocate
Amicus Therapeutics
Jean Campbell
Principal, JF Campbell Consultants; Founding Board of Directors
Professional Patient Advocates in Life Sciences (PPALS)
Jean McCoy
EVP, Partnerships
Reverba
Jennifer Bonfrisco
CEO/Founder
Corlexia Clinical Services
Jennifer Helfer
Senior Director, Patient Advocacy and Engagement
Encoded Therapeutics
Jenny McCue
Senior Director, Patient Advocacy
Ultragenyx
Jill Pollander
VP of Patient Services
NORD
Jodie Gillon
SVP Corporate Affairs and Patient Advocacy
Peptilogics
Joe Boncore
CEO
MassBio
John F. Crowley
Chairman and Chief Executive Officer
Amicus Therapeutics
Kate Tighe
Head US Public Affairs & Patient Advocacy
Sanofi
Kathleen Flynn
Chief Executive Officer
National Tay-Sachs & Allied Diseases Association
Keri Yale
Head, Patient Affairs and Engagement
Boehringer Ingelheim
Kristie Cline
Director Advocacy
Marinus Pharmaceuticals
Lisa Savitt
Vice President
SmithSolve
Louise Vetter
Chief Executive Officer
Huntington’s Disease Society of America
Maggie Teliska
Patient Advocate and member of Cytokinetics Patient and Caregiver Advisory Council
Patient Advocate and member of Cytokinetics Patient and Caregiver Advisory Council
Mark Dant
Chairman of Board
EveryLife Foundation
Mary Pomerantz
Director of Advocacy
Cytokinetics
Michael Zincone
Senior Director Patient Advocacy
Pfizer
Michele Rhee
Vice President Patient Affairs and Advocacy
X4 Pharma
Natacha Raphael
Regional Head, Corporate Affairs & Patient Advocacy, Intercontinental Region
Biogen
Pat Furlong
Founding President & Chief Executive Officer
Parent Project Muscular Dystrophy
Paul Pereira
Vice President and Head of Patient Advocacy
Ardelyx
Regan Sherman
Director Patient Advocacy
Entrada Therapeutics.
Robyn Bent
RN, MS, CAPT, U.S. Public Health Service, Director, CDER PFDD Program Center for Drug Evaluation and Research, Office of the Center Director
U.S. Food and Drug Administration
Shannon Altimari
Global Head of Advocacy to Outcomes, Oncology
GSK
Sharon Lamberton
Deputy Vice President, State Government Advocacy
PhRMA
Sherrita Dorsey
RN, MSN, FNP, US Advocacy & Patient Engagement Lead Specialty BU
GSK
Sonali Chopra
Executive Director, Patient Advocacy Relations
Genentech
Stephanie Birkey Reffey
Patient Advocacy & Alliance Relations Director
Exact Sciences
Tom Croce
Vice President, Global Patient Advocacy
Jazz Pharmaceuticals
Tricia Mullins
Global Head, Early Patient Engagement & Professional Societies (Ex-China)
BeiGene USA
Veronica Moore
Senior Manager, Patient Advocacy
Horizon Therapeutics
Wendy Erler
VP, Global Head Patient Experience, Insights and Patient Advocacy
Alexion

INTERESTED IN JOINING AS A SPEAKER, panelist or workshop leader?

Let’s talk about presenting a session, joining a panel discussion or conducting a valuable workshop.

Please contact Amy Chapman at achapman@dgeconfs.com