Featured Speakers
Helen Allvin
Global Patient Advocacy Lead, Orion Corporation
Orion Pharma
Shannon Altimari
Global Head of Advocacy to Outcomes, Oncology
GSK
Jacose Bell
Global Patient Advocacy Lead
Spark Therapeutics
Anders Blaedel
Senior Director
Lundbeck
Thomas Bols
Head of Government and Patient Advocacy, EMEA & APAC, PTC Therapeutics
Inc.
Mathieu Boudes
Hayley Chapman
Senior Program Director
Patient Focused Medicines Development (PFMD)
Jaime Christmas
CEO
New Zealand Amyloidosis Patients Association
Jill Dolgin
Executive Director, Global Patient Advocacy
AGTC
Leilani Johnston
Industry Pharmacist and Rare Voices Patient Ambassador
ADPKD at RDSA (Rare Diseases South Africa)
Marie-Neith de Loisy
Patient Engagement Head - France
Novartis
Stephanie Ludwig
Global Patient Partnership Chapter Lead - Neuroscience
Roche
Tricia Mullins
Executive Director, Global Head, Early Patient Engagement & Professional Societies
(Ex-China) BEIGENE
Carol - Anne Partridge
Founder/CEO/Chairperson
CDKL5 UK
Durhane Wong Reiger
CEO Canadian Organization for Rare Disorders, Chair, Rare Diseases International, Vice Chair
Asia Pacific Rare Disease International
Fatima Scipione
Vice President Global Patient Affairs
Blueprint Medicines
Luisa Strani
Director Patient Advocacy
Alexion
Emma Sutcliffe
Global Patient Officer
Ipsen
Belen Gonzalez Sutil
Associate Director, Patient Advocacy
ULTRAGENYX
Maia Thrift-Perry
Global Head, Patient Advocacy and Public Health Policy
BeiGene
Theodora Varkonyi-Weisz
Head, Patient Advocacy and Public Affairs EMEA
Novartis Gene Therapies
Carlos Martinez Villela
Former PAG & Social Programs Director, LatAm
Farmacon Global
Amber Webb
Therapeutic Lead | Cardiovascular, US & Worldwide Patient Advocacy
BRISTOL MYERS SQUIBB