Conference Speakers

Helen Allvin
Global Patient Advocacy Lead, Orion Corporation
Orion Pharma

Shannon Altimari
Global Head of Advocacy to Outcomes, Oncology
GSK

Jacose Bell
Global Patient Advocacy Lead
Spark Therapeutics

Anders Blaedel
Senior Director
Lundbeck

Thomas Bols
Head of Government and Patient Advocacy, EMEA & APAC, PTC Therapeutics
Inc.

Mathieu Boudes

Hayley Chapman
Senior Program Director
Patient Focused Medicines Development (PFMD)

Jaime Christmas
CEO
New Zealand Amyloidosis Patients Association

Jill Dolgin
Executive Director, Global Patient Advocacy
AGTC

Leilani Johnston
Industry Pharmacist and Rare Voices Patient Ambassador
ADPKD at RDSA (Rare Diseases South Africa)

Marie-Neith de Loisy
Patient Engagement Head - France
Novartis

Stephanie Ludwig
Global Patient Partnership Chapter Lead - Neuroscience
Roche

Tricia Mullins
Executive Director, Global Head, Early Patient Engagement & Professional Societies
(Ex-China) BEIGENE

Carol - Anne Partridge
Founder/CEO/Chairperson
CDKL5 UK

Durhane Wong Reiger
CEO Canadian Organization for Rare Disorders, Chair, Rare Diseases International, Vice Chair
Asia Pacific Rare Disease International

Fatima Scipione
Vice President Global Patient Affairs
Blueprint Medicines

Luisa Strani
Director Patient Advocacy
Alexion

Emma Sutcliffe
Global Patient Officer
Ipsen

Belen Gonzalez Sutil
Associate Director, Patient Advocacy
ULTRAGENYX

Maia Thrift-Perry
Global Head, Patient Advocacy and Public Health Policy
BeiGene

Theodora Varkonyi-Weisz
Head, Patient Advocacy and Public Affairs EMEA
Novartis Gene Therapies

Carlos Martinez Villela
Former PAG & Social Programs Director, LatAm
Farmacon Global

Amber Webb
Therapeutic Lead | Cardiovascular, US & Worldwide Patient Advocacy
BRISTOL MYERS SQUIBB
INTERESTED IN JOINING AS A SPEAKER, panelist or workshop leader?
Let’s talk about presenting a session, joining a panel discussion or conducting a valuable workshop.
Please contact Amy Chapman at achapman@dgeconfs.com