Event Speakers
Ana Bozas, PhD, CMPP
AD Global Medical Communications
Akcea Therapeutics
Andy Overmyer
Head of Global Business Operations
Akcea Therapeutics
Charlene Hafer-Macko
Associate Professor, Neurology
UNIVERSITY OF MARYLAND SCHOOL OF MEDICINE
Dan Donovan
Co-Founder & CEO
rareLife solutions
David Maher
Co-Founder
STILL’S DISEASE, THE 411
Deborah Vick
Patient Advocate; Owner
CRAFTING4ACAUSE
Harsha K. Rajasimha
Founder and Chairman, INDOUSRARE
Founder Chairman, Indo US Organization for Rare Diseases
Ioannos Tomazos
Senior Director, Global HEOR
ALEXION
Isabel Firmino
Vice President, Head of Global Medical Affairs Therapeutic Areas
Alexion Pharmaceuticals, Inc.
Israel Gutierrez
Vice President, Pharmacovigilance and Drug Safety
Geron Corporation
Joan A. Chambers
Senior Director, Marketing & Outreach
The Center for Information & Study on Clinical Research Participation (CISCRP)
Keri Kasun
Senior MSL, Rare Disease, Spinal Muscular Atrophy
BIOGEN
May Orfali
Chief Medical Officer
BIOASIS TECHNOLOGIES
Michele Johnson
Patient Advocate; Author
THE PAIN FREE PA
Michelle Gilmor
Senior Medical Director, Rare Disease
REGENXBIO
Natalie Douglas
Vice Chairman, GLOBAL GENES
Co-Founder, RAREITI
Patricia Roselle
Global Head, Patient Network Management
SANOFI
Robert Consalvo
Director of Strategic Commercial Engagement
H1 INSIGHTS
Robin Powers
Patient Advocate
Shalla Newton
Co-Founder
STILL’S DISEASE, THE 411
Shweta Rane
Director of Global Scientific Communications
Alexion Pharmaceuticals, Inc.
Wendy White
Chairman, GLOBAL GENES
Co-Founder, RAREITI

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Please contact Amy Chapman at achapman@dgeconfs.com