Gendered Medicine:

Advancing Gender Equity in Research, Therapy, and Care

June 1-2, 2020

Chicago, IL

Event Overview

Join us for this leading-edge conference that will explore Women’s Issues in Healthcare and how medical enterprises can deploy strategies that disrupt the status quo and advance gender equity in research, diagnostics, therapeutics and ultimately, the patient experience.
Don’t sit on the sidelines. This very important educational conference will bring together thought leaders and senior executives from pharmaceutical, biotechnology, medical device and healthcare companies that are on the leading edge and breaking through gendered medicine barriers.
Hear their stories and learn from their best practices. It’s time for every medical science company to explore gender bias and its impact on research, therapy and care. Gain specific operational strategies that can position your organization as a market leader breaking through barriers and advancing gender equity in medical care.

Don’t miss these sessions on these timely and relevant topics in clinical research, therapy and care: 

  • How Gender Bias Impacts Healthcare Delivery 
  • How to Incorporate More Diversity into Medical Research 
  • The Female Disadvantage in Clinical Trials and How it Impacts Everyone 
  • Sex and Gender in Cardiovascular Care: The New Frontier  
  • Women Issues in Approaches to Pain Management 
  • Neuroscience and Women: The Pink and Blue Brains  
  • Gender Bias in Pharmaceutical Advertising and How it Impacts the Knowledge base 

The Inn at Penn, a Hilton Hotel


3600 Sansom St,
Philadelphia, PA 19104
(215) 222-0200

Hotel Website

Special Event Rate
Book Today!

About the Chairperson


Dr. Matthew T. Roe has been a faculty member at Duke University School of Medine and the Duke Clinical Research Institute (DCRI) since 1999. As a senior investigator at the DCRI, he has been the principal investigator for numerous phase II-IV cardiovascular clinical trials and is currently a co-principal investigator for the ADAPTABLE trial—the first large-scale pragmatic trials being conducted in the PCORnet network. He has also served in leadership roles for several observational registries focusing upon the treatment and outcomes of patients with cardiovascular disease and has served as the Director of the DCRI Clinical Research Fellowship since 2010.

Featured Speakers


Craig Lipset

Head of Clinical Innovation


Jeff Kingsley

Chief Executive Officer
IACT Health 


Dawn Anderson

Managing Director, Life Sciences Strategy and Operations, R&D Practice


Ross Friedberg

General Counsel & Chief Privacy Officer
Doctor on Demand

Top Reasons to Attend

  1. Hear first-hand ideas and strategies for a market leader position in a diverse medical science approach
  2. Strengthen your approach to medical research and clinical trials
  3. Understanding how advertising, training and other key operations can play a pivotal role in gender bias
  4. Gain specific strategies that can be incorporated into ongoing learning and development opportunities throughout the organization
  5. Ultimately position your healthcare organization for improved patient outcomes and lower healthcare costs

Attendee Profile

Attendees will be from the following organizations:

  • Hospitals, Academics and Healthcare Systems
  • Healthcare providers 
  • Pharmaceutical companies
  • Health insurance companies 
  • Biotechnology companies 
  • Medical Device manufacturers 
  • Healthcare related associations, foundations, solutions providers, educational organizations, government entities and venture capitalists 

This is a can’t miss event for leaders and executives in the following areas:

  • Health systems, health management, health economics
  • Marketing, advertising, communications
  • Business Development
  • Patient advocacy
  • Clinical trials
  • Clinical research/development
  • Pharmacovigilance/drug safety
  • Pipeline/portfolio management
  • Product development
  • Compliance/regulatory affairs
  • Learning/development and training


January 29th, 2020 | Day 1

8:00 AM - 9:00 AM

Registration & Continental Breakfast

9:00 AM - 9:15 AM

Day 1 Opening Remarks

9:15 AM - 10:00 AM

Rare Disease Literature – Rare & Different

The quantity of rare disease literature is disproportionally lower than that of other diseases.

In this keynote session, delegates will:

  • Evaluate the rare disease literature landscape
  • Examine the reasons why rare disease communications and publications are rare and different
  • Look at including patient advocates and caregivers in authorship teams
  • Explore why open access to information is important 

Dan Donovan - Founder
rareLife Solutions

10:00 AM - 10:15 AM

Morning Networking & Refreshment Break

10:15 AM - 11:00 AM

Medical Affairs in Rare Disease

In rare disease, the role and responsibilities of medical affairs are magnified.

This session will cover:

  • Evolution of the medical affairs function in rare disease
  • Magnified outward facing communication functions 
  • Increased internal corporate and clinical responsibilities

Ronald Walls, MD - US Head of Operations, & Business Development, Vice President Clinical Development Medical Affairs 
The CSPC Pharmaceutical Group

11:00 AM - 12:00 PM

PATIENT ADVOCATE PANEL: Open Access to Rare Disease Communications

Patient advocates will discuss current rare disease communications trends and forward-thinking recommendations for future initiatives with a focus on open access.

Panel will discuss:

  • Types of rare disease medical literature patients and caregivers are seeking 
  • Importance of reporting clinical trial results to patients in a timely manner
  • Enhancing knowledge transfer with plain language lay summaries
  • Looking forward: recommendations and suggestions for meeting patients and caregivers’ needs for rare disease medical publications and communications 

Panel Moderator:

Sheila BosePresident
SB LifeSciences Consulting, Inc.

Panelists (invited):

Susan Stein, MPH - Director, Patient Advocacy, Agios Pharmaceuticals
Director/Board Member, Global Genes

Dakota Fisher-VanceFounder, Young Adult Cancer Connection
Patient Advocacy Manager, Horizon Therapeutics

12:00 PM - 1:00 PM

Networking Lunch

1:00 PM - 1:45 PM

Industry Challenges to Accepting & Integrating Patients, Advocates & Caregivers (PACs) as Authors

Why have life sciences companies, heavily involved in rare disease medical publications and with a huge vested interest in PACs been slow to include them as authors?

This presentation will:

  • Explore the benefits and challenges of integrating PACs into authorship teams
  • Discuss PAC’s influences on empowering patients globally with plain language medical publications and communications
  • Evaluate PACs effects on pharma, biotech and medical equipment companies to address patients’ needs in medical publications

Peter Snyder - Sr. Director, Global Publications, Oncology Medical Affairs

1:45 PM - 2:30 PM

Non-profit Initiatives to Provide Plain Language Publications

In an effort to address needs for more rare disease publications, non-profit organizations are providing plain language publications and multi-media communications.

This session will address:

  • Rare disease information needs non-profits work to address
  • Specific diseases within rare that need more attention
  • Public response to non-profit rare disease publications
  • Multi-media rare disease communications (webinars, videos)
  • Pros and cons of patients relying on social media for information

Sika DunyohDirector or Education Programs

2:30 PM - 2:45 PM

Afternoon Networking & Refreshment Break

2:45 PM - 3:30 PM

Including the Patient Voice in Clinical Trial Results

Pharmaceutical companies in Europe submit patient diaries and experiences along with clinical trial results for new drug approvals. The FDA is calling for similar requirements in the USA.

This session will:

  • Explore the FDA’s initiatives to include patient experiences in new drug approval applications
  • Examine methods for enhancing clinical focused medical communications by adding patient pre-diagnosis personal data
  • Highlight the benefits of publishing patient diaries as easily understandable information for the lay community
  • Discuss alternatives for including patients in clinical trial design and informing patients as soon as clinical trial results are known

Susan Stein, MPH - Director, Patient Advocacy, Agios Pharmaceuticals
Director/Board Member, Global Genes

PANEL - Medical Publications & Global Medical Communications

A panel of experienced medical writers, publishers and communications directors will discuss the challenges to publish in rare disease.

3:30 PM - 4:15 PM

Rare Disease Publications & Communications by Life Stages & Age

Where are teenagers and young adults turning for medical information, emotional support, advice and plain language summaries of abstracts and clinical trial results?

Participants in this session will:

  • Discuss the what is missing in rare disease communications by life stages and age
  • Identify the kinds of medical literature patients and caregivers are looking for at different life stages
  • Explore the quantity and quality of rare disease medical publications segmented by life stages
  • Examine the role of of social media as a resource for rare disease information teens, young adults and adults

Dakota Fisher-VanceFounder
Patient Advocacy Manager

4:15 PM - 4:30 PM

Day 1 Closing Remarks


January 30th, 2020 | Day 2

8:00 AM - 9:00 AM

Networking Breakfast & Registration

9:00 AM - 9:15 AM

Day 2 Introduction

9:15 AM - 10:00 AM


Education, inspiration and actionable takeaways – this session will examine challenges in delivering rare disease presentations that are fit for the purposes they need to meet.

Topics include:

  • Challenges of presenting abstracts to mixed audiences -- medical professionals and patients
  • Differences between the delivery and perception of verbal presentations compared to printed publications
  • Current landscape and future trends
  • Best practices for conveying a message that is fit for the purpose the need to meet


Open Forum Q&A

10:00 AM - 10:15 AM

Morning Networking & Refreshment Break

10:15 AM - 11:15 AM

Transitioning from Small Biotech to Mid-size Pharma

For decades, small, scientific-minded companies have focused on rare diseases and orphan drugs. When a small company evolves into a mid-size one, what changes are needed to keep the company competitive?

In this session, participants will learn about:

  • Small biotech’s role in bringing orphan drugs to market
  • Impact of drug commercialization on internal processes and thinking
  • Necessary relationships between publishers and mid-size pharma to market drugs


11:15 AM - 12:00 PM

Knowledge Transfer Challenges in Rare Disease

Rare disease medical publishing faces unique challenges that other disease categories do not encounter. 

In this session, attendees will:

  • Discuss the challenges of small sample size and non-traditional clinical design on rare disease medical publishing 
  • Explore the current landscape and future trends of patient centricity in rare disease medical publishing
  • Identify solutions to expand open access to rare disease communications and publications

12:00 PM - 1:00 PM

Networking Lunch

1:00 PM - 1:45 PM

CASE STUDY – Helping Management Understand the Utility of Medical Affairs & Commercialization

Session topics will include:

  • Real life case study overview
  • Criticality of working with the patients and caregivers to inspire internal decision making
  • Lessons learned


1:45 PM - 2:30 PM

PANEL - Medical Publications & Global Medical Communications

A panel of experienced medical writers, publishers and communications directors will discuss the challenges to publish in rare disease.

2:30 PM - 2:45 PM

Afternoon Networking & Refreshment Break

2:45 PM - 3:30 PM

BRAINSTORMING SESSION for Medical Communications Rare Disease

This forum will provide a platform to:

  • Identify current rare disease information and ease of finding these resources
  • Explore options to increase the visibility, quality and quantity of rare disease communications in rare disease publications
  • Examine the trending landscapes for digital and social media communications

Dan Donovan - Founder

3:30 PM - 4:00 PM

Day 2 closing remarks



Ronald Walls

The CSPC Pharmaceutical Group

US Head of Operations, & Business Development, Vice President Clinical Development Medical Affairs


Dakota Fisher-Vance

Young Adult Cancer Connection

Founder (Also Patient Advocacy Manager, Horizon Therapeutics)


Dan Donovan






Register at Event



After 12/12/19



Available for
This Rate has Expired


Register 2 Attendees, Get 1 Complimentary Registration*!

Interested in sending groups of 7 or more? Contact us directly for pricing.



Contact Amy Chapman at (561) 571-7687