Event Speakers
Alexandra Nagler
Global Patient Advocacy Lead, Patient, Innovation, Access Policy
CSL Vifor
Anders Blaedel
Senior Director
Lundbeck
Carol - Anne Partridge
Founder/CEO/Chairperson
CDKL5 UK
Durhane Wong Reiger
CEO Canadian Organization for Rare Disorders, Chair, Rare Diseases International, Vice Chair
Asia Pacific Rare Disease International
Emma Sutcliffe
Global Patient Officer
Ipsen
Helen Allvin
Patient Advocacy Group Manager
Orion Pharma
Jaime Christmas
CEO
New Zealand Amyloidosis Patients Association
Leilani Johnston
Industry Pharmacist and Rare Voices Patient Ambassador
ADPKD at RDSA (Rare Diseases South Africa)
Libby Noble
Director Patient Advocacy
Alexion
Luisa Strani
Director Patient Advocacy
Alexion
Marie-Neith de Loisy
Patient Engagement Head - France
Novartis
Mathieu Boudes
Stephanie Ludwig
Global Patient Partnership Chapter Lead - Neuroscience
Roche
Theodora Varkonyi-Weisz
Head, Patient Advocacy and Public Affairs EMEA
Novartis Gene Therapies
Thomas Bols
Head of Government and Patient Advocacy, EMEA & APAC, PTC Therapeutics
Inc.

INTERESTED IN JOINING AS A SPEAKER, panelist or workshop leader?

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Please contact Amy Chapman at achapman@dgeconfs.com